Çin’deki gen terapisi denemelerinde iki çocuk ölümü kuralları sıkılaştırdı

29 kaynak
medpagetoday.com
  • 2025 yılında Çin'de gerçekleştirilen iki ayrı deneysel CRISPR gen düzenleme çalışmasında iki çocuk hayatını kaybetti; ölümler, soruşturmalar ortaya çıkarana kadar aylarca gizli tutuldu.
  • Yeni 818 sayılı Kararname kapsamında Çin, denetimi güçlendirmek amacıyla yeni biyomedikal teknolojilere yönelik araştırmacı inisiyatifli denemeleri sadece üst düzey hastanelerle sınırlandırdı.
  • Biyoetik uzmanları, vakaların 1999 yılında ABD'de yaşanan Jesse Gelsinger ölümünü anımsattığını belirterek, hızın bilgilendirilmiş onam ve düzenleyici güvenlik önlemlerinin yerini alamayacağı konusunda uyarıyor.
Kaynaklar (29)
  1. 1 Two children died from gene therapies in China - Nature www.nature.com
  2. 2 Brain-directed gene editing ends in death - CRISPR Medicine News crisprmedicinenews.com
  3. 3 Second death in Chinese clinical trial rekindles debate on safety www.statnews.com
  4. 4 China's fast-track clinical trials are in the spotlight after child deaths www.nature.com
  5. 5 The Promise and Peril of Gene Editing | MedPage Today www.medpagetoday.com
  6. 6 Death of girl in Chinese gene-editing trial kept secret: Report medicalxpress.com
  7. 7 Death of girl in Chinese gene-editing trial was never made public www.science.org
  8. 8 In China, the hidden death of 'Mei', a 6-year-old girl, after gene ... www.lemonde.fr
  9. 9 Child Died in Chinese Biotech Firm's Gene Editing Trial - Bloomberg www.bloomberg.com
  10. 10 Second China Gene-Editing Trial Death: HuidaGene - CASRAI casrai.org
  11. 11 The promise and peril of gene editing geneticliteracyproject.org
  12. 12 Child dies in Chinese gene-editing trial | The Straits Times www.straitstimes.com
  13. 13 Baby KJ and the road map to personalized gene‐editing care - PMC pmc.ncbi.nlm.nih.gov
  14. 14 What Baby KJ's Breakthrough Means to Us www.scn2a.org
  15. 15 A child's death in a gene therapy trial has just sent shockwaves ... www.linkedin.com
  16. 16 Reporter's Notebook: Child Dies in Brain-Targeting AAV Gene ... www.insideprecisionmedicine.com
  17. 17 Death of a girl in China following experimental gene therapy goes ... sciencemediacentre.es
  18. 18 Gene therapy's slow rebirth - Innovation District - Children's National innovationdistrict.childrensnational.org
  19. 19 Girl's undisclosed death in gene-editing trial raises red flags ... - CNN www.cnn.com
  20. 20 A Breakthrough in Medicine: Personalized Gene Editing to Save KJ www.youtube.com
  21. 21 Parents want accountability after a cutting-edge gene-editing trial in ... www.instagram.com
  22. 22 Reports that two children died after receiving gene - Facebook www.facebook.com
  23. 23 GOING HOME: Baby KJ Muldoon, who was the world's first patient to ... www.facebook.com
  24. 24 Researcher Faces Investigation for Concealing 6-Year-Old Girl's ... gizmodo.com
  25. 25 Another child death in a Chinese gene-editing trial—this time a boy ... x.com
  26. 26 Journal, university investigations launched into gene-editing death ... retractionwatch.com
  27. 27 The M Case: Death Caused by Base Editing | Impact Ethics impactethics.ca
  28. 28 Chinese startup injects CRISPR therapy into kids - LinkedIn www.linkedin.com
  29. 29 ‘Dangerous’: Two children die in gene trials www.news.com.au
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